Blog on the future of digital health in end of life and bereavement care

The Future of Digital Health in End of Life and Bereavement Care

The Centre for the Art of Dying Well at St. Mary’s University recently hosted a webinar discussing the future of digital health in end of life and bereavement care. The panel, consisting of experts in palliative care, digital health, and end of life research, shared valuable insights into the current state and future potential of digital technologies in this critical area of healthcare.

Key takeaways from the webinar include:

1. Digital care plans: Professor Julia Riley, founder of Coordinate My Care, emphasised the importance of personalised digital care plans that allow patients to express their wishes and preferences for end of life care. These plans can be easily shared with healthcare providers, ensuring that patients receive the care they desire.
2. Enhancing access and empowerment: Digital technologies have the potential to enhance access to care, empower patients, improve care coordination, and support better decision-making. However, it is crucial to ensure that these technologies are accessible to all, including those in remote and rural areas.
3. Online forums and support: Dr. Shaun Peter Qureshi presented findings from the ‘Internet and End of Life’ research project, highlighting the value of online forums in providing comfort, community, and support for people with life-limiting illnesses, their caregivers, and the bereaved.
4. The role of companionship: Dr. John Downey discussed the importance of end of life companionship and the potential for digital technologies to complement and support this crucial aspect of care. While digital tools cannot replace the physical presence and hand-holding provided by companions, they can help facilitate connections and support.
5. Balancing digital innovation and human connection: The panelists agreed that while digital technologies offer immense potential, it is essential to strike a balance between innovation and the preservation of human connection in end of life care. Digital tools should be used to enhance, rather than replace, the compassionate care provided by healthcare professionals and volunteers.

As we look to the future, it is clear that digital health will play an increasingly important role in end of life and bereavement care. By harnessing the power of technology while maintaining the central importance of human connection and compassion, we can work towards a future in which all individuals receive the highest quality care and support during life’s most difficult moments.